Showing posts with label inclusion. Show all posts
Showing posts with label inclusion. Show all posts

Tuesday, April 7, 2015

Day 7: Acceptance is Inclusive

This is still one of my favorite pictures of Ben with his best friend at school.
On the eve of my report card conference with Ben’s teacher and wonderful team of support people who work with him, I thought it only appropriate to write about the importance of inclusion and how inclusion leads to acceptance.  We have been fortunate to find a school that embraces the inclusion model and works hard to make inclusion work.  There are many different types of classroom settings that are designed for different purposes.  Inclusion is one such setting.  While an inclusion classroom might not be the best placement for every learner, I do believe that the spirit of inclusion in our society is an important and necessary goal- regardless of the severity of need of the individual.
First, I want to start by saying that inclusion is not easy.  An inclusion classroom is more than just a room full of children with disabilities mixed in with their “typically developing” peers.  As Jess from Diary of a Mom explains,  “Inclusion is a process. Day to day, moment to moment – inclusion takes thought and planning and effort. It takes a mindset of hope and possibility. It takes belief in the intrinsic value and unlimited potential of each and every human being. It takes determination and tenacity. It takes compassion and empathy.  It takes the understanding that to truly come together, we must learn not just to tolerate, but to CELEBRATE our differences. There is far more than beauty in our diversity – there is incredible strength.”
But how do we teach our children not just to accept but to celebrate differences?  This seems great in theory but can become tricky in the real world.  There are so many factors at play.
It is human nature to fear what we do not understand.  Not only children but often adults have little experience with autism, Down’s Syndrome, Tourette’s, etc.  I have a friend who has a son with Down’s Syndrome, and she once told me that she tells his teachers every year (and I’m paraphrasing here based on my memory of our conversation), “I don’t want you to feel intimidated by my son.  I don’t want you to feel overwhelmed by his diagnosis and his needs.  Never lose sight of the fact that he first and foremost a little boy.  And I am here to support you all the way.” 
I think it’s important to acknowledge that challenges will come up as we work to support an inclusive environment, not just in the classroom but also in our community.  People still don’t know how to react when they observe behaviors outside their comfort zones.  Recently I was at an Easter egg hunt for autistic children and their families.  The egg hunt was due to start at 11:45 am.  It was 11:50 am and there were still no signs of the hunt beginning.   A little boy about eight years old walked directly up to me, took my wrist in his hand and pointed to my watch as he said, “The time is 11:50.  We are now five minutes behind schedule.  The schedule said that the egg hunt was due to start at 11:45 am.”  I calmly looked at the boy and said, “You’re correct, but I’m not the one in charge of starting this event.  You need to speak to the person in charge, and she is standing over there.”  Instantly, the boy dropped my arm and walked over to the event coordinator.  I wasn’t put off at all by the boy’s actions because I understood the situation and his needs.  How many others in our society would have known how to respond? 
When Ben reaches adulthood, I want him to live in a world that accepts and embraces differences.  In order to do this, it is our responsibility as adults to model behaviors of respect.  We must always remember that children are watching our actions more than they are listening to our words.  As Jess from “Diary of a Mom” says, “If they see us tease, they will tease. We must rethink the easy jokes about those who are different from us. We must reconsider the words that can so easily fall off our tongues. “Retarded” has become ubiquitous, nearly accepted. It’s up to us to remove it from the lexicon of the next generation. Yes, we must select our words with care. Words have the power to encourage, to create, to inspire. They also have the power to wound, to scar, and to destroy. And once they’re out there, we can’t take them back. Our children hear every word that we say. We MUST choose them carefully.”
We fear the things that we do not understand.

I want to start conversations about differences so that children can feel free to ask questions in a respectful manner.  By asking questions, they will gain a greater understanding, and hopefully appreciation for their classmates who may learn or act in different ways from them.  The more we respect one another, the less we allow others to tease and bully.  

Inclusion is not always easy but it is worth the time and effort to do it right.

Every child deserves to be accepted and belong.

**And, as a bonus, here’s my list of factors that I believe need to be present for an inclusion classroom to be successful.  This list is by no means exhaustive, but I believe it is a good starting point with schools that are looking to implement or refine their inclusion models.**

Classroom Environment (Setting)

The inclusion classroom is designed with the needs of all learners in mind, but it is highly individualized based on students’ IEP goals and accommodations.   The classroom is set up to minimize distractions and promote learning with…

-Clearly defined spaces/areas within the classroom with relevant materials only.
(i.e. stations/centers, carpet area, student work area, class library, etc)

-Daily schedule posted, referred to often, and consistently followed
            -Student visual schedules are available on desks or readily accessible

-Predictable routines and procedures

-Consistent rules and expectations (Gives clarity on how to do things)

-Calm, organized environment with a reduction of visual distractions

-Cool-down area (For sensory breaks- Students learn to use as needed)

-Calm lighting and a soothing environment during work time.

Teacher

In an inclusion classroom, the classroom teacher works side-by-side with the ESE teacher as a team for both planning and instruction.  This might be done using a co-teaching approach or utilizing several different models.

Some characteristics of a strong inclusion classroom teacher include…

-Kind, firm, and consistent

-Has some background in children with special needs (if possible)

-Willingness to learn and grow (seeks out professional development)

-Maintains clear and consistent expectations.

-Clear, precise teaching points (not overly long lessons).  Uses visual cues along with verbal directions.

-Has a calm disposition (does not get “ruffled” easily).   Recognizes that all behavior is communication and does not take student behaviors personally.

-Holds kids accountable academically and behaviorally.   Students know exactly what to expect. There is no “gray” area.

-Has high expectations but also differentiates for the needs of all learners.

Additional Supports

One major key to making inclusion work is considering how all of the ESE support teachers (speech, OT, paras, etc) fit into the structures for the day.  These key members of the team need to coordinate schedules effectively.  Ideally, they offer supports within the inclusion classroom and provide techniques that can be utilized throughout the day, not just when they are in the class providing services.

-The classroom teacher works in partnership with the ESE resource teacher, the SLP, the OT, and other school personnel.

-Schedules are built with student needs in mind first (as defined by the IEP).

-Movement Breaks/Cool-down breaks are provided as needed.  The student has a “safe space” either inside or outside the classroom (ie OT room) during times of high stress

-When “Big Events” occur at school, sensory strategies are provided during and after

-Visual Schedules/Reinforcers are part of the daily routine

-The schedule is built with predictability in mind.  Students always know what’s coming next.

-Tasks are explained but also defined visually with examples.

-Teacher uses nonverbal cues to remind students of rules and expectations

-Increase the frequency and immediacy of reinforcement

-Small group instruction is utilized as often as possible.

-ESE supports “push-in” the classroom whenever possible and plan closely with the classroom teacher based on curriculum standards and IEP goals.


*Some of these suggestions were taken from the Florida Inclusion Network, which is a wonderful collection of resources.  You can learn more at www.floridainclusionnetwork.com

Thursday, April 2, 2015

Day 2: Acceptance is Respect



Another key ingredient to autism acceptance is respect.

Respect comes in many different forms.

As Jess from Diary of a Mom explains, “A message of respect doesn’t mean there are no tough days, no challenges…but it does mean that we need to carefully incorporate autistics into these message and not lose sight of their value and dignity.”

Here are five ways to show respect to autistic individuals:

1)   Respect by communicating in new and different ways, and listening beyond words to truly understand.
Most individuals on the autism spectrum have difficulty communicating with others.  My son has pragmatic language delays.  Pragmatic, or social language, includes things such as initiating a conversation with another person, talking back and forth, and building off the ideas of others.  This is why I encourage the server at the restaurant to ask Ben for his order, along with the barista at Starbucks, and the teller at Toys R Us.  There are few ways to make conversation easier for an autistic person.  First, give them plenty of time to think before expecting them to answer a question.  This may mean pausing for an almost uncomfortable amount of time to allow the person time to process and think.  This may also mean understanding that the person may not give you eye contact or respond in traditional ways.  Some people on the spectrum communicate through scripts, which could be memorized snippets of dialogue from movies, TV shows, or You Tube videos.  Others, like my son, like to ask certain questions over and over, because he seeks comfort in the familiarity of the routine and the security of the answers.  Pay attention to the context in which the words are used rather than the words themselves to discern what the person is truly trying to say.  Carefully observe the person's actions and gestures, as these will often convey more meaning than the words alone.  Some individuals on the spectrum cannot speak, but this does not mean that they have nothing to say.  Communicate with them anyway.  Respect that when a person is upset or in the throes of a meltdown, their language may shut down completely.  Respect the person's need for space and a safe place to find their calm again.

2) Respect the power of words and talk about strengths first
Too often, conversations about autism focus on a person’s deficits.  I’ve seen many instances where adults discuss a child’s autism in negative terms in front of the child!  The adults have no idea the damaging impact of their words can have.  Instead of focusing on a person’s weaknesses, flip the script and talk about strengths. Look for examples of what the person is doing well and encourage
these positive behaviors. 

3)    Respect by learning from the perspectives of others. 
Remember that autism is a spectrum and others will have different points of view based on their experiences.  You may not agree with everyone’s philosophy but respect that their journeys are different from yours.  Listen to autistic adults, because they understand autism better than any professional.  We must respect others for their place in this journey but this does not mean that we have to compromise our own beliefs. 

4)   Respect by practicing inclusion.
I’ve read so many sad articles that go something like this.  An autistic child invites every kid in his class to a birthday party, only to have no one show up.  It’s important to remember that autistic individuals may have difficulty with peer relationships, but they still want to be included.  Show respect by including them in birthday parties, events, and family gatherings whenever possible.  Seek to make the environment as comfortable as possible.  And show kindness and understanding if the person needs a quiet space when the environment becomes too overwhelming.   Inclusion has be more than simply a name.  It take active involvement to make it truly work.  Ben has been lucky to be part of an inclusion classroom this year and he has made so many friends who he spends time with both in and out of class.  This could not happen without the amazing team of teachers who work hard to create a loving, supporting environment for him and his classmates.  He also has a loving family who accepts him for who he is and he has had more trips and adventures in his short life than many adults!  He has traveled by train, airplane, cruise ship, and everything in between!  Inclusion benefits everyone.  

5)   Respect by avoiding assumptions and stereotypes

There are so many myths out there about autism that can be downright damaging.  Some that are particularly hurtful are the myths that autism is caused by bad parenting, and that autistic people feel no empathy or affection.  These myths are not only untrue but perpetuate feelings of pity and place barriers between autistics and the rest of the world.  My son doesn’t need people to feel sorry for him.  He is a vibrant child with many talents and strengths.  He may have different challenges from other children, but we are addressing these and he is showing growth every day.  He is also one child with autism.  He does not represent every autistic person.  He is different from his best buddy in his class who also happens to have autism.  Both boys are quite different from many, many others on the spectrum.  Don’t make the mistake of thinking you know everything about autism because of your experience with one person.  

The best way to show respect is to value the individual and his or her unique strengths.  Seek to understand and learn from that person.  You’ll be happy you did!

Thursday, May 22, 2014

A Kindergarten Dream Come True



           Sending a child to kindergarten is a huge milestone, as any parent who's been there will tell you.  When the big day finally arrives, we snap pictures of our child in their brand new clothes, backpack in tow, as they stand with barely-contained excitement outside the classroom door.  Our heart tugs as they walk away from us through that classroom door, looking much too small to be sent off into this big and scary world. We hover a few extra minutes, peeking through the window, knowing that once we walk away we will have to admit to ourselves that our baby has just taken another yet step on the path to adulthood.   Leaving our child in that teacher’s hands for the first time is a really big deal.