*Today I'm linking with a fellow blogger Jennifer, aka Full Spectrum Momma, on today's topic. You can check it out here.
The month of April nearing
its end.
Autism Awareness Month is
winding down.
For many, this is a great
relief.
Why?
Because awareness is very
different from acceptance.
Are these words so really so
different?
In a word, yes.
The distinction is quite
important because the Autism Awareness movement, sponsored by organizations
such as Autism Speaks, has a very particular agenda.
This month has morphed over the years into a publicity campaign designed to create deep rooted associations between autism and tragedy,
devastation, epidemic, and fear.
We see messages like these on our Facebook pages:
Or this:
No smiles for either of you...
Or this one on billboards or buses driving by on the
streets:
Some of you may not see anything wrong with these ads.
You may view them as public service announcements, calling for
an end to a devastating disease that ruins the lives of many.
Sadly, this has become the popular view of what autism is.
Sadly, these are some of the first messages that a parent sees when their precious child is diagnosed with autism. They are among the first hits on a simple Google search of the word "autism".
The video “I am Autism” produced by Autism Speaks portrays
Autism as the bogeyman who steals our children away.
This is why awareness campaigns concern me greatly.
Because, unlike cancer and diabetes, autism is not a life-threatening
disease.
Autism is not something that person "gets," as the ad above implies in a sadistically humorous parody of the "Got Milk" campaign.
I don't seek to minimize the struggles that many autistic individuals face every day. These are very real.
Autistic individuals may live with challenges, but they also have many wonderful traits that can enrich their lives. These strengths rarely become part of the conversation unless we are discussing prodigies or savants or those who have "overcome" their autism.
Contrary to popular belief, autism is not something that can be "cured".
Ask an autistic adult and they will tell you that autism is a part of who they are. It is an integral part of their identity, both the challenges and the strengths.
And so, when ads such as the one above call for an end of
autism, these adults see this as a call to wipe out people like
themselves.
Ads like this paint a bleak picture of the futures for children
such as mine. This leads to fear and
devastation in the hearts of parents, but, even worse, it leads to feelings of worthlessness
within the autistic person. Who wants to
be viewed as a burden to society or something that needs to be eliminated?
Which leads me to the concept of ableism.
I had never even heard of
the word ableism until about a year ago.
I had to look it up in the
dictionary, and this is what I found:
Ableism is a form of
discrimination against people with disabilities.
It is the belief, whether
conscious or unconscious, that non-disabled people are inherently superior.
Ableism is believing that
people are automatically better, or have better lives, or have better brains or
bodies because they aren’t disabled. (www.autismacceptancemonth.com)
Ableism is often so subtle
that those of us without disabilities may completely miss it if we’re not
looking for it.
Sadly, however, examples of the ableism exist all
around us.
We see it in the belief that individuals with
disabilities should learn to fit into our world, and when they cannot adapt,
then they should be put in a more restrictive, isolated setting.
We see it when others make fun of those who act
differently.
We hear it in jokes made at the expense of those with disabilities or when people say things like "He's acting so autistic".
The mindset is reinforced in books, television, and
movies.
Autism Awareness Month is coming to a close, but the
question remains-
Are we as a society truly more aware?
And, if so, what “awareness” messages have we received?
That it is okay for a mother to throw her autistic child off a bridge because he is just too much to handle?
That millions of children across the globe are in danger
because of the “disease” known as autism?
That autism will steal our children away if we’re not
watchful and vigilant?
That autistic individuals are lepers and “the least of us”?
When we listen to these messages, we must consider who is doing
the talking. In this case, powerful
organizations such as Autism Speaks are sending certain messages loud and
clear. Meanwhile, the voices of autistic
adults are often missing from the conversation.
Certainly challenges exist for autistic individuals and we need to work together to find
solutions to face these challenges.
More job opportunities are needed for autistic adults.
Better housing options are needed for the growing numbers of adults aging out of the system.
We need more innovative communication tools to assist those who cannot speak through traditional methods.
Our society needs to get a lot better at finding ways to accommodate those with sensory differences.
There is so much work to do.
But our conversation cannot end there.
We must look beyond our definition of normal in order to
recognize the true worth and potential in others.
We must recognize ableist thinking when we see it and call it
for what it is.
It begins with eliminating certain words from our vocabulary,
starting with the “r-” word.
It begins with changing our beliefs about the capabilities of
others.
It begins with listening to the voices of those who we say we
are supporting in the first place.
Awareness is not nearly enough.
It begins with acceptance.
It ends with respect.
